Mid-Thigh High

Remember when I had needles jammed between my toes back in February? The results have long been in, I met with my doctor, things are better than most, probably what I expected, and overall I'm content.

1. I do have lymphedema. 
Shocking to no one.

2. It looks like a bulk of the stagnant lymphatic fluid is in my lower leg.
I knew this just based on appearance and my ability to get away with wearing only a compression sock to the gym. Sure, all day and it starts to really back up around my knee, but I can see the line of my quad muscle in that leg if I stand up, which is not something I can say about my calf. The good thing about this is my doctor gave her blessing to have a custom garment made that stops just above my knee. I think it was a first for her, and a first for the lady who measured me for said garment.

Said garment arrived, much to everyone's surprise it stays up, and I now feel slightly freer in my workouts without having silicone grips stuck right up under my ass. It's a little tighter than I would like, but with a little extreme stretching, I can hopefully stop walking around with a muffin top above my garment.

3. I have amazing lymphatic flow in my right leg. 
She said this wasn't always the norm for someone with lymphedema in one leg. It means nothing to me, but I'll take it.

4. I am a candidate for surgery. 
Am I? Technically. Does she advise it? No.

And it's not that she said I can't, she just said given how "not bad" my leg is, she doesn't think it would be worth the stress, money, time, and pain for results that may not be guaranteed. Most people looking into the surgery hope to end up with a leg that looks like mine. I'm looking into the surgery because I want a leg that returns to normal. Possible? Yes. But worth the gamble? Who knows.

Because the surgery is not covered by insurance, I would have to put down a little deposit for the surgeon to fight and appeal my insurance company. From others who have gone before me, I know this could be anywhere from $10,000 to $35,000. And guess what happens if all those appeals get rejected? There are no refunds.

Throw in the $800+ I'd have to pay just for a consultation, plus the travel, aaaaaaand I can see my doctor's point. That's a lot of risk with the potential for no reward.

So for now I'll be content on not pursuing the surgery, but knowing full well that in a couple of years it may be covered by insurance without the fight, and it may be perfected to the point that I will get perfection. In the mean time, I'll continue obsessively caring for it so that it stays as normal as possible, and appreciating my skinny jeans that fit.

All the darkness is the painfully injected contrast working its way through my lymphatic system at 1 hour intervals. One calf is clearly not like the other.

1 comment:

Unknown said...

I had absolutely no symptoms or warnings that I had cancer. In March 2007 I suddenly felt like I had diarrhea but it was all blood and I went to the ER. I bled profusely through the rectum for an hour or so until they got it stopped. The doctor did a colonoscopy and found a stage II cancer, i was devastated when my doctor broke the sad news to me because i thought that was the end for me because i have heard so much news about how cancer have stolen away the lives of patients. With time i developed a 'belly' when all my life my abdomen was flat. I was still in my search for a cure after undergoing chemo and radiation thrice Until a friend of mine directed me to doctor Amber and advised me to try alternative medicine, which i did because then my doctor was no longer helpful at all and i had given up on myself. I got the herbal medicine which was relatively small in size, which i took for 10 weeks. For the past two and half years, I have had two additional colonoscopies and two CT scans, plus blood tests. So far, no recurrence, i am indeed really grafeful to GOD and Dr.Amber who stood by me and made all this happen through his medicine. Never give up hope and if you find yourself in the situation i was some years ago you can also contact him too via his personal email drambermurray@gmail.com